Meet other HIBM patients
Bike for Kam was started by Kam and her friends, but the project represents all HIBM patients. All the proceeds will directly benefit HIBM medical research, so that HIBM will no longer affect people in the future.
We would love for you to get to know the people you are supporting, when you contribute towards the treatment of HIBM.
Take a minute to watch some of the brief testimonies from patients, including an interview about the experience of living with HIBM from Dr. Daniel Darvish and Dr. Babak Darvish, Co-founders of ARM and its molecular laboratory, HRG
Though, HIBM is categorized as an orphan disease, it affects all ethnicities and backgrounds. Each patient may have a unique experience and some may progress more quickly than others, but all patients share the common struggle of HIBM affliction
* Bike for Kam is a grassroots fundraiser with the intention of raising funds and awareness for HIBM and ARM.
LIVING WITH HIBM: Dr. Daniel Darvish and Dr. Babak Darvish personal interview
Wood Siblings: Since HIBM is genetic it has been known to affect an entire family. The Wood family is that example where all four siblings have HIBM.
Kam: old video of Kam when she was walking